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E-health: the challenges of being connected in health

E-santé : les enjeux d'être connecté en santé

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Published on Tuesday, February 27, 2018 by Céline Guilleux

Summary

L'objectif de l'ouvrage collectif est de créer un espace de réflexion permettant de dresser un portrait hybride des différents enjeux éthiques, déontologiques et juridiques dans le développement et l’usage des applications mobiles.

Announcement

Argument

The emergence of the Internet combined with the ever-changing development of mobile devices has transformed the practices of individuals in all areas of daily life: socialization, education, economy, health. Changes in the relationship to health through information and communication technologies (ICTs), the accelerated pace of expansion of the mobile application market, and the delays in population health research to assess their applications raise multiple ethical, deontological and legal issues despite the relevance of these ICTs to the health of populations. These mobile applications, both in their use and design, aim to provide population health solutions to reach vulnerable people in crisis, support individuals in self-regulation and prevent risky behavior. They also contribute to the democratization of health information and the continuous monitoring of the health status of the population. However, these applications encourage certain excesses such as the quantification of the behavior of individuals, the monitoring or even control of daily practices, and the marketing of unregulated products. Moreover, these applications, falling within the more general framework of the online universe and connected digital networks, escape the conventional laws that hinder their regulation. The variability of the quality of information and the risks of de-contextualization of individual or collective behaviors in health push the scientific community to question the conditions of use of these devices, especially with regard to the protection of personal medical data and underlying conceptions of the body and medicine. Indeed, the rapid evolution of these technologies, when compared to the speed of academic research, makes the anticipation of problems and the implementation of reliable solutions more complex. Faced with this lack of data, there is a willingness on the part of academic researchers to contribute to the regulation of the mobile health applications industry through the establishment of collaborations with the various actors involved and the fostering of understanding from different perspectives in order to open a dialogue and propose alternatives.

Ojectives of the collective work

The ICT and Health and Ethics Strategic Groupings of the Quebec Population Health Research Network (QPHRN) are launching a call for proposals for a collective work that will bring together different experiences, both from the research and professional perspectives. The objective is to create a space for reflection to draw a hybrid portrait of the different ethical, deontological and legal issues in the development and use of mobile applications. Ultimately, it would be a question of ensuring that the latter remain at the service of the population's health.

The following topics can be addressed (this list is non-exhaustive):

  • Ethical use of mobile applications in health
  • Deontology and design of mobile applications for health
  • Legislation and mobile applications in health
  • Mobile applications in health and big data
  • Governance and mobile applications in health
  • Mobile applications in health and marketing

The book will be published by the PUM editions.

Submission of proposals

To submit your chapter proposal, please send a 300-500 word Word document to the following address: ris.coordination@gmail.com. Please indicate on the file sent your name, surname, affiliation, and title

Deadline: February 28th, 2018

Overall schedule

The following overall schedule will be applied to the book:

  • Call for proposals: February 28th, 2018

  • Selection and Response to Proposals: April 30, 2018
  • Deadline for Submission of Chapters: October 31, 2018
  • Revisions by the authors and submission of the final version: April 30, 2019
  • Launch: October 2019

Information: ris.coordination@gmail.com

Date(s)

  • Wednesday, February 28, 2018

Keywords

  • technologie de l'information et de communication, santé, TIC, éthique, application mobile

Contact(s)

  • Chantal Robillard
    courriel : ris [dot] coordination [at] gmail [dot] com

Information source

  • Camille Benoit
    courriel : communication [dot] ris [at] gmail [dot] com

To cite this announcement

« E-health: the challenges of being connected in health », Call for papers, Calenda, Published on Tuesday, February 27, 2018, https://calenda.org/434937

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