The conference is organised in the context of the annual meeting of Alter (European Society for Disability Research / Société européenne de recherche sur le handicap). Its goal is to offer a European and international multidisciplinary view of disability research, across its whole spectrum, addressing sociohistorical and political dimensions as well as the subjective experiences of the actors concerned (disabled persons themselves and those close to them, professionals of the field and other social and political actors), but also considering disability as a category of analysis likely to shed light on the modes of organisation of contemporary societies.

Argument

The conference is organised in the context of the annual meeting of Alter (European Society for Disability Research / Société européenne de recherche sur le handicap). Its goal is to offer a European and international multidisciplinary view of disability research, across its whole spectrum, addressing sociohistorical and political dimensions as well as the subjective experiences of the actors concerned (disabled persons themselves and those close to them, professionals of the field and other social and political actors), but also considering disability as a category of analysis likely to shed light on the modes of organisation of contemporary societies.

Program

2 July

9:00 -   9:30 : Registration

9:30 - 10:00 : Welcome and Opening Address

• Pierre-Cyril Hautcoeur, President of EHESS
• Isabelle Ville, scientific coordinator

10:00 - 10:30

• Keynote Speaker : Jan Tössebro, Norwegian University of Science and Technology, Scandinavian Disability Policy - from deinstitutionalization to anti-discrimination to ?

10:30 - 11:00 Coffee Break

11:00 - 12:00 Plenary Session 1 

• Reframing inclusive education: educational equality as capability equality, Lorella Terzi, University of Roehampton, London
• Decolonizing Epistemologies and Politics: Disability, Accessibility and Rurality in India, Vandana Chaudhry, City University of New-York, USA
• Out of the shadows: Uncovering violence against women and girls with disabilities in Portugal, Paula Campos Pinto, University of Lisbon

12:00 - 13:30 : Lunch

13:30 - 15:30 Parallel Sessions A1/B1/C1/D1

Representation of disability in debates, media

Chair : Anne Marcellini

• Representations of disability in Swedish political debates, Ida Norberg
• La représentation de la diversité fonctionnelle dans la presse espagnole. Antonio Iáñez Dominguez
• Think handicap with Grimm`s Fairy Tales. Mathilde Apelle
• La personne amputée dans les médias : quand l'ambiguïté des images bouleverse la compréhension du handicap et des technologies de compensation/restauration. Valentine Gourinat, Nathanaël Jarrasse

Disability and work: inability, activation and employability

Chair : Erik Samoy

• The myths and the facts of disability and work in Portugal, José Miguel Nogueira
• A new hierarchy of disability? A critical analysis of the implementation of the right to work and employment in the national context of Germany ,  Elisa Fiala
• Disabled employees’ identity work within organizational disability regimes: a study of 3 Belgian cases, Jammaers Eline, Patrizia Zanoni
• The Work-capacity approach to disability determination, Zach Morris

Theoretical,  conceptual and methological innovations for thinking disability

Chair : Jean-Sébastien Eideliman

• Quelle place pour les personnes en situation de handicap dans une recherche-action avisée émancipatoire? Cédric Routier, Agnès d'Arripe
• La scolarisation des élèves de CLIS 1 : un empan liminal, Claire de Saint Martin
• Pour une philosophie politique du handicap. Biopolitique, politique des normes. Gaspard Brun
• Le récit de vie comme instrument innovant d’émancipation des représentations de genre et de handicap dans la réhabilitation professionnelle des personnes paraplégiques, Elena Pont
• Handicap psychique, maladie mentale et handicap cognitif : des rapports troubles, David Sauzé

Representations of disability in non-occidental societies

Chair : Catherine Barral

• Social representations of disability in Algeria : paving the way for culturally-sensitive disability rights monitoring, Teresa Janela Pinto, Paula Campos Pinto
• Begging among Persons with Disabilities in Addis Ababa, Ethiopia, Nora Groce, Barbara Murray
• Pakistan towards inclusive system: backdrop, practices, challenges and initiatives, Uzair-ul-Hassan
• Theoretical and methodological perspectives on Difference and Stigma: researching the views and perspectives of children with albinism in Malawi, Paul Lynch
• Voices in the Dark: Congolese people with a physical disability in (in)visible spaces, Jori De Coster

15:30 - 16:00 : Coffee Break

16:00 - 17:30 : Parallel Sessions A2/B2/C2/D2

Institutional care and disability. History and contemporary

Chair : Gildas Bregain

• Supporting vocational activity of people with intellectual disability in Poland, Agnieszka Woynarowska
• Geographies of residential care facilities and impacts on residents' social participation in France, Noémie Rapegno
• Institutional history and individual experiences of the French category “rare disabilities”. Louis Bertrand, Myriam Winance
• La prise en charge des personnes polyhandicapées à Genève de 1950 à nos jours : évolution des enjeux autour d’une population « hyper-vulnérable » Mariama Kaba

Disability, Family and Childhood

Chair : Jean-François Ravaud

• Qualité de vie au travail des personnes en situations de handicap de la Fonction Publique, Mélisande Codina, Jeanine Pommier
• Quelles organisations collectives et quelles actions individuelles pour permettre l'emploi des personnes handicapées dans la fonction publique ? Fanny Jaffrès, Marie-Renée Guével
• Une résistible politique du handicap au sein des ressources humaines des collectivités territoriales. Le cas d’un pacte territorial pour le handicap dans la fonction publique. Anouk Flamant
• Le (non)respect de l’obligation d’emploi de 6% de travailleurs handicapés dans la fonction publique en France, Béatrice Valdes

Disability, social relationships

Chair : Sophia Rosman

• Les vacances pour personnes dites handicapées mentales : entre inclusion et enfermement dans le handicap, Adrien Primerano
• La pratique des personnes handicapées dans les organisations sportives nationales. Une histoire d'acteurs, Flavien Bouttet
• Des marginalités encadrées. Etude des rapports au handicap du monde du cirque contemporain français, Elise Lantz
• La pairémulation : apprendre la légitimité à être soi, Pierre Dufour

The father as educational and relational mediator, including opportunities, strains and aspirations

Chair :  Roberta Caldin

• Fathers and children with disabilities. Knowing how to wait, Roberta Caldin, Alessia Cinotti
• Disabled children's father between affective function and regulatory function, Fabio Bocci
• Fathers of young people with intellectual disability : supporting autonomy, with care. Simone Visentin, Serena Dal Molin
• Lived Parenting and Cochlear Implants: Exploring the Lifeworld and Networks of Parents Living in Spaces of Hearing Differentness, Liz Adams Lyngbäck

18:00 – 19:30 : Cocktail

3 July

9:00 - 10:30 : Parallel Sessions A3/B3/C3/D3

Innovative practices for inclusive  education

Chair : Eric Plaisance

• Enhancing Inclusive Processes : a Survey on the Perception of Teachers in Training, Antonello Mura, Antioco Luigi Zurru
• Disability and access to educational oppertunities: a study of universities in delhi, Kunwar Siddharth Dadhwal
• Autobiography and disability: educational perspectives, Marzia Mazzer
• A la recherche de significations dans le discours et les pratiques des enseignants. Contenus des représentations sociales de l’inclusion scolaire des enfants et adolescents en situation de handicap en Italie, Tine Cheikh Tidiane, Lucia De Anna

Disability, social relationships

Chair : Anders Gustavsson

• Humiliation and In-group Identification: Comparative Study of Scheduled Caste and Physically Challenged Students, Sharmila Rathee
• The committees of functional diversity in the 15M movement: reformulating disability activism in Spain, Miriam Arenas-Conejo, Asun Pié-Balaguer
• Disability/dependence, community care and feminism: systematisation of the experience of community care workers in Chile, Gloria Silva, Magdalena Pardo
• Accompany, educate, liberate. An interdisciplinary study on sexual assistance for people with disabilities, Angela Magnanini

Disability, Family and Childhood

Chair : Sarra Mougel

• Aspects sociaux, modalités d’identification et de désignation des problèmes d’agitation/inattention dans l’enfance : une analyse quantitative des demandes adressées à un secteur de pédopsychiatrie parisien, Maëlle Planche
• Croisement entre surdité et migration : quels enjeux éducatifs ? Diane Bedoin
• Questioning « otherness » in Japan: The case of education for disabled children, Anne-Lise Mithout
• Les liens fraternels et le processus de construction des liens extrafamiliaux : le point de vue subjectif et rétrospectif d’adultes qui ont une déficience intellectuelle. Anne-Laure Poujol

The inclusion challenge in higher education through the lens of students with disabilities

Chair :  Cristina De Vecchi

• Looking for the missing dimensions of well-being and well-becoming in the higher education system: theoretical and methodological elements from a disability perspective, Marina Santi, Mario Biggeri
• Students with disabilities as co-researchers: the “In Deep” project at the University of Padova , Diego Di Masi, Elisa Di Luca
• Disability and higher education: inclusion at university for active citizenship, Marisa Pavone, Rosa Bellacicco
• Being disabled at the time of a neo-liberal university: resistance strategies from an Italian case study, Francesca Peruzzo, Simona D’Alessio

10:30 - 11:00 : Coffee Break

11:00 - 12:30 : Parallel Sessions A4/B4/C4/D4

Disability as a challenge for thinking normality

Chair: Marie Coutant

• Questioning contemporary societies approach to disabled children’s childhoods: storytelling at the embodied intersection of autism and child, Jill Smith
• Devant un monde muet Les morceaux de conversation de Joseph Grigely, Pierre Von-Ow
• Quand les sourds interrogent les fondements de la culture, Isabelle Dagneaux
• Faire l'amour autrement : diversité fonctionnelle dans la sexualité des hommes lésés médullaires, Anne-Cécile Mouget

Rights of persons with disability and disability policies

Chair: Paula Campos-Pinto

• Affirmative action to promote the employment of disabled people: the public administration perspective, Patricia Neca, Paula Castro
• Connecting lived lives and disability policy change in Europe – outline of a theoretical strategy , Rune Halvorsen, Bjørn Hvinden
• Questioning productivism through the lens of disability: reflections on state socialist and postsocialist disability policy, Teodor Mladenov
• Disability, education and participation: a critical analysis of recent policy developments in England, Felicity Armstrong

Handicap and technology

Chair : Myriam Winance

• L’anticipation du handicap dans les consultations prénatales au Brésil et en France. Effet des modes de régulation de pratiques, Véronique Mirlesse, Isabelle Ville
• Relations entre l'architecture des établissements de soin et les troubles des personnes atteintes d'autisme. Estelle Demilly, Ecole Nationale Supérieure d'Architecture de Lyon
• Law and prenatal diagnosis in France. Persistence of a medical model of disability or personal rights affirmation? Quentin Mameri, Bénédicte CHampenois-Rousseau, Emmanuelle Fillion
• Obésité et opération bariatrique. La sortie d’une situation de handicap ? Aurélien Troisoeufs

Disability encounters the Capability Approach

Chair : Sophie Mitra

• The Capability Approach and Bridging Ageing and Disability, Jerome Bickenbach
• A Capability Approach Based Rehabilitation for Acquired Brain Injuries: a Mixed Methods Impact Evaluation, Mario Biggeri, Roberta Chiaramonti
• Capabilities and functionings : when reasons to act govern ways of doing. About family accompaniment of persons with dementia, Catherine Le Galès, Martine Bungener
• Measuring Disability and Wellbeing based on the Capability Approach, Sophie Mitra

12:30 - 14:00 : Lunch

14:00 - 15:30

Ecological analysis of disability : accessibility, environment, architecture

Chair : Emmanuelle Fillion

• Creating an inclusive mall environment with the precede-proceed model : a living lab case study, Sara Ahmed, Bonnie Swaine
• Manoeuvres and campaigns: an investigation into wheelchair users' shaping of the London public transport system, Velho Raquel
• Handicap psychique, cognitif ou mental : les parcours commentés comme méthode d’élucidation de la teneur des ‘gênes’ à la mobilité quotidienne. Virginie Dejoux, Joël Meissonnier

Care, practical help, professional skills

Chair : Noémie Rapegno

• Looking at work activities through the prism of sign language. Negotiating professional practices: from work ecology to ecosystem, Mélanie Henault-Tessier, Sophie Dalle-Nazébi
• Hybridation sociale et compétences collectives en situation d'incertitude dans le secteur des handicaps rares, Philippe Lyet, Marc Fourdrignier
• Quand rester chez soi rend libre : les enjeux économiques et sociaux de l’aide humaine en emploi direct au domicile des personnes en situation de handicap moteur lourd. Abdia Touahria-Gaillard, Centre Maurice Hallbwachs
• Home based family interviews after pediatric traumatic brain injury: analysis and interests institutional history and individual experiences of the French category, Anne Boissel

Feminism, crip and queer

Chair : Pierre Brasseur

• Quand Gender et Disability Studies ne se rencontrent pas, Christine Gruson
• Queer-crip theory : a new challenge for disability studies, Charlotte Puiseux
• Ces corps qui ne comptent pas : pathologisation, altérisation, réappropriation, Noémie Aulombard
• Can prostitution be cripped ? Organising sexual assistance for people with disabilities in Europe, Giulia Garofalo Geymonat

The School and the challenges of inclusive policies and practices

Chair : Christine Philip

• Les contradictions de l'inclusion scolaire à la française, Philippe Mazereau
• L'éducation inclusive : n'ayez pas peur ! Ghislain Magerotte
• “Sur la route” de l'accessibilité pédagogique : ambiguïtés des politiques publiques et freins institutionnels, Hervé Benoit
• L'inclusion scolaire des élèves avec un handicap visible : les exemples du syndrome d'Asperger et du TDA/H, Christine Philip

15:30 – 16:00 : Coffee Break

16:00 - 16:30 : Keynote speaker

• "Rethinking disability: lessons from the past, questions for the future" Myriam Winance, French Institute of Health & Medical Research 

16:30 – 17:30 : Plenary Session 2

Chair : Henri-Jacques Stiker

• "Disability in the Labour Force Survey", Erik Samoy, Department of Work and Social Economy / Flemish Government, Brussels, Belgium
• "Active citizenship for persons with psychosocial disabilities in Sweden: a life-course perspective" Rafael Lindqvist and Marie Sepulchre, Uppsala University, Sweden
• "Colonialism and Disability : The situation of the blind in Algeria during the Colonial period" Gildas Bregain, University of Rennes II, France

17:30 - 18:30 : Alter meeting